If I'm not careful, this will devolve into an excuse to talk about how cute our grandchildren are. I'll try to keep information flowing at the same time.
Information is the hard thing. Waiting for test results, and scheduling, and dealing with monkey wrenches like Covid means that there are too many unknowns in these equations. Oh, and all this is happening around a major holiday, when people take days off to travel and to be with their own families! Plus, although they are working together, Boston Children's and Dana-Farber are separate entities at some level, and have different rules that need to be reconciled when scheduling appointments.
The start date for the transplant process had finally firmed up as January 8, then had to be postponed because of Covid rules. We don't know till when, hopefully just a short time.
Which brings me to a major prayer request: health for all. That Covid will finish its course quickly and not run sequentially through the whole family. That we will not bring any significant Florida germs when we go up there, and that our arrival will not be the signal for Covid or any other illness to infect us. There are of course much more serious prayer needs coming up, but the process can't happen until it gets started! Also, the delay means they will have to do another round of maintenance chemo in New Hampshire, which is time-consuming as well as stressful.
Not all delays are necessarily bad. As a friend said, quoting her own mother, "One may never know what God is keeping us from."
Yesterday we watched Grace getting her central line flushed. She knows the drill, and will often herself get the box with all the equipment and supplies. She is patient and calm while the procedure is being done—being too busy wiping down her own doll with an alcohol wipe to pay much attention to what else is happening.
