The long-anticipated Day +100 is rapidly approaching, but Grace managed to make it more exciting by picking up her first post-transplant cold. Turns out it is just a simple cold, but in her situation a runny nose and mild fever sent her on her first unscheduled return to the hospital post-transplant. There are so many things more serious than a cold that they have to check for, and they need to observe her closely to make sure her body is handling the challenge well.

I worried that she might fear the prison doors were closing around her again, but she took it well, and was very happy to beat her dad in Chutes and Ladders twice in a row. (Does anyone besides me remember that the game was once called Snakes and Ladders?)

Here's the short story version from Heather:

Overall, things have been going well, Grace's numbers coming back satisfactorily.

But then she got a cold. Just runny nose and sneezing. But after her nap, she had a mild fever. Boston wanted us to take her to Dartmouth, but Dartmouth said that if her fever went up, they'd be transferring her to Boston. So Jon decided to take her straight to Boston. (That was Tuesday night.)

They did a plethora of tests and the only positive was rhinovirus. But they wanted to keep an eye out on her for at least 24 hours, so they admitted her. She did get blood overnight, but everything else is looking good. Jon is hoping to come home tomorrow afternoon. She did some painting and lots of games with Daddy. He went over to the Dana Farber resource room to get her more books, since I had only packed her a few.

This is a really short version to get the word out and still get myself to bed relatively on time. Please keep up the prayers. Day +100 is just around the corner, and Jon discussed with the doctors the weaning process for the immunosuppressant drug.

I'm so very thankful that our family has not had any sickness from the time we had COVID at Christmas until now. Please pray that general trend continues and we keep sickness (and hospital visits) away.

Here's a really cool thing about the timing: Our nephew's wife (niece-in-law?), the one who's a pediatrician at Boston Children's, happened to be on duty in the Emergency Room Tuesday night!

Posted by sursumcorda on Wednesday, May 15, 2024 at 9:16 pm | Edit
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She has been cranky and a little sad today, and I wondered if it was because we were back in the hospital, and since she has a rhinovirus, isn't allowed out of the room, so can't go to the playroom, or a walk down the hall, but I asked her if she wanted to go outside, home, or to see Mommy, and she didn't particularly react to that, so I guess I was projecting my own discouragement of having a two-day stay on her.

Posted by Jon Daley on Wednesday, May 15, 2024 at 10:32 pm

You and I played many games of Chutes and Ladders, along with Candyland. Mostly at 209 Root Avenue, as I recall. Happy days!

Posted by Laurie on Thursday, May 16, 2024 at 8:18 am

Grace is home again!

Posted by SursumCorda on Thursday, May 16, 2024 at 6:15 pm
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