The doctors seemed to be taking Grace's recent intestinal problems very casually, but since she threw up her NG tube this morning, they're sitting up and taking notice. The new plan is for Grace to be admitted (in Boston) on Friday for observation and testing. (Not the way they wanted to celebrate her brother's 18th birthday!) Here's Heather's latest post.
Today, Boston called to say they'd like to observe Grace over the weekend and to prepare for admission on Friday. They will likely do a colonoscopy and maybe even an endoscopy. (And Dartmouth suggested they get some bone marrow while she's sedated.)
She threw up her NG tube this morning and so Jon took her to Dartmouth. They were able to do her regular appointment stuff so we don't have to go in tomorrow. It was a more traumatic NG tube placement than the other two times, and their tape is not as good.
We have been giving her zofran the last few days. Her appetite has been practically nil. There's definitely something going on. It's not the typical GVHD symptoms, but they haven't ruled it out yet. There might be an NF1 related cause; I've done minimal research on that and it's a possibility.
We depend on God to hold us up, so please intercede on our behalf.
How quickly things can change.
What did I just say about things changing quickly? Grace has developed a fever, so they're heading to Boston tonight.
Praying!
Will be visiting sweet Grace on my last day working at Boston Children’s tomorrow!
It's so nice to have that blessing amid all the upheaval. And I hear you're bringing a special surprise guest with you, Layla!
It's amazing the lengths Grace will go to in order to see you guys. :)
