We just returned from a great visit to New England. (Yes, all through Hurricane Milton, which was a bit of an adventure, but I'll get to that later.) In addition to attending my nephew's wedding, we had a lot of fun with grandchildren.
Grace was amazing! Except for the NG tube, and the bag she carries around all day, wherever she goes, and her central line, and the fact that she asks "Milk in it?" of any new food, you'd never guess she was sick. Just shy of her third birthday, she's as active and energetic and competent as you could wish. And very much in the "Me do it!" stage. Cute as all get out, too.
You knew there was going to be a "But...."
Suddenly, she is sick. Two of her siblings recently developed regular colds, but this doesn't look like a cold: so far, at least, the only symptom has been throwing up, which she did several times last night. At last word, she has no fever—and this is a big part of the prayer request, because in her case a fever sends her immediately to the hospital.
Many thanks for your continuing long-distance love for our little girl.
Praying!
UPDATE: So far, so good with Grace. It's now appearing that she has the cold her siblings have, which is actually good news.
MORNING UPDATE from Heather: Actually, this morning, she doesn't seem to have the cold. But her nose tube came out again. So we are trying the day without it. People can pray that she eats and drinks what she needs to. She took her morning meds like a champ!
EVENING UPDATE from Heather: Grace has some itchiness on her trunk that may be weather related or may be gvhd related. We have cortisone cream for that and the doctors are keeping an eye on it.
I (Linda) can attest that unless the weather had changed drastically since we left New Hampshire, it's not heat rash!
