Jon began his latest update on Grace this way:

An ENT, a radiologist and an oncologist walk into a bar.... Oh, maybe not, but they at least had a discussion about Grace while looking over the MRI and CT scan together, and the conclusion is that it isn't a plexiform fibroma at all! Which is what Heather has had the faith to pray for all along! 

So, great news!

He continued, however with something scary: Because they are still looking for the cause of her mild hearing loss, Grace is scheduled for surgery, and more anesthesia. :( Thursday, March 27, time TBD but probably early morning.

[The plan is] to check out the potential fluid behind her ear (last time I talked to the ENT, he was thinking it might not be fluid, but some spongy tissue), possibly install a tube in her ear drum to let the fluid out, if it is there but getting blocked from going down her eustachian tube, and do a biopsy to grab near the potential NF1 fibroma to see what it is.

There's so much to be thankful for, and still so much to pray for. Thank you all for your loving support.

Posted by sursumcorda on Friday, March 21, 2025 at 5:58 am | Edit
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Sounds like a great team is looking after her!



Posted by Michele on Friday, March 21, 2025 at 8:36 am
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