Short Grace Update

Grace is getting an MRI, and ECG, and bloodwork (including thyroid) tomorrow morning at Dartmouth.  I'm not sure how much the thyroid medicine is working, so we'll see what the numbers say.  Her skin is very dry and she has rashes in places, and also the dryness is itchy so she scratches it, sometimes to bleeding.

Today is day +641!  What a big number, and we are thankful. We're coming up on two years since diagnosis and oh, how far she's come!

Pictures here.

Thank you all for caring about our little one big four-year-old!

Posted by sursumcorda on Monday, November 10, 2025 at 9:38 pm | Edit
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