Grace is getting an MRI, and ECG, and bloodwork (including thyroid) tomorrow morning at Dartmouth. I'm not sure how much the thyroid medicine is working, so we'll see what the numbers say. Her skin is very dry and she has rashes in places, and also the dryness is itchy so she scratches it, sometimes to bleeding.
Today is day +641! What a big number, and we are thankful. We're coming up on two years since diagnosis and oh, how far she's come!
Thank you all for caring about our little one big four-year-old!
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Grace is FOUR. Wow! I continue to pray for her every night, the whole family as well. Thanks for the update.
Thank you, Grace, and who show your compassion. The test results are available, but a bit confusing, and the medical people have not yet chimed in with their opinions. Some results look good, some might or might not be concerning, and one for special prayer: "But the MRI report also says to further investigate a possible thing near or on her eye nerve. Please pray for us to not worry and for that to be nothing."
One thing was great news: "Grace's heart is perfect." And so it is. As Henry V said, "Our hearts are in the trim!"
