Dear Grace,
Please stop trying to distract me from politics by getting hurt.
Love,
Grandma
From Heather this morning:
Sometime recently, Grace fell off a wooden block that she was using as a stool. I thought she had twisted her ankle. She would complain on and off, but still often insist on walking. Then Sunday, Noah came to me and asked, "Did you know that Grace's foot is crooked?"
So we decided it was time to see an orthopedist. Monday, she got X-rays and lo, and behold, a bending fracture in her left fibula. (Imagine a green twig that just started to crack, but released before it broke.) They do not cast this kind of break and said to follow her lead about how much she walks. However, she has such a high pain tolerance that I think we need to restrain her a bit more. She was limping more yesterday.
We have messages in to her other doctors, to discuss the effects of steroids and also NF1 on her bones.
Please pray for healing and wisdom and that I will not worry about future fractures.
She's not kidding about Grace's high pain tolerance. When the doctor was gently pressing on places on her leg, beginning with her toes, she did not react at all until he reached the exact place where the x-ray indicated the break, and then she only flinched.
Young children's bones are amazing when it comes to healing; if I broke my fibula no doctor would casually say to me, "Do what you feel like, but no bouncing on a trampoline, and stay away from the playground for a few days." Maybe Grace takes after her great-grandfather, who followed his doctor's advice as to restrictions when he went home after surgery: "Just do what you feel like doing, but I'd avoid chopping wood for a while." Apparently the doctor didn't anticipate that he would feel well enough to go bowling, and he ended up back in the hospital.
Young children's bones are remarkable, but what makes this a special matter for prayer is that one of the many possible complications that can occur with NF1 is bone problems. Grace has shown no other symptoms than the big one (JMML), and there's every possibility that this event is just the result of (temporary) long-term steroid use and being an active toddler. But something more serious is not off the table.
UPDATE: Grace is doing great, and the doctors are sure the fracture is due to weakness from long-term steroid use (necessary for her JMML treatment, and from which she is now recovering). The particular bone problems that sometimes come with NF1 are different from this, and since she has not exhibited them yet, they don't expect them ever to be a problem. We are so thankful!
