Grace's third birthday started normally enough. We enjoyed a video chat, watching her come to grips with the fact that the answer to "How old are you?" had changed dramatically!
However, her very busy day ended with a trip to the Dartmouth emergency room because a key part of her central line broke during the routine evening flush.
After a night and a morning filled with what would have been a comedy of errors if there had been anything funny about it, she had surgery to remove the entire central line. This major milestone was intended to be reached two weeks later, rather than on an emergency basis, but she did well, and the job is done! I've copied the following directly from Heather's post, so you can see the pictures.
Line removal surgery was successful. She did great for the IV.
She came out of anesthesia quickly and they were home by 4:30. It is strange to her to have her line out. But next week she'll be able to have her first bath in a year! She is excited about that.
After she got home, Grace opened her birthday joy jar.
Heather's note on the Joy Jar:
NEGU Never Ever Give Up. This organization was founded by a girl who had a terminal brain tumor. She wanted to spread joy to her fellows and give a Joy Jar full of goodies to every child diagnosed with cancer. The organization has now grown so that they give Joy Jar subscriptions to the children and their families. Every month, Grace gets a jar with a book, crayons, coloring book, stuffed animal, and other toys. She loves her Joy Jars and is so excited when a new one comes. They also have given us all t-shirts, a beach towel, a blanket, a popcorn bowl with popcorn, and numerous other goodies. One month, they included the book Jessie's dad wrote about her life, which was powerful. I certainly cried hard, but it has such a hopeful theme even while dealing with all the hard questions of life, death, and terminal illness in a child. negu.org
What a great milestone. Only onward and upward from here.
